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For Families & Adults

A community that sees you and celebrates who you are.

Whether you're raising a child with a facial difference or navigating adulthood yourself, CCA is a place where you belong - fully and completely.

I have a child with a facial differenceI'm an adult with a facial difference
For families

Supporting your child and your whole family.

Living with a facial difference affects everyone in the family. CCA's programs address the medical, social, emotional, and educational dimensions of growing up.

Annual Retreat & Educational Symposium

Three days of connection for children, siblings, parents, and adults. Peer mentoring, educational panels, and the irreplaceable experience of being surrounded by people who truly understand.

About the Retreat ➜

Meeting Other People Like You

Many people with facial differences, or caregivers of a child with a craniofacial condition, feel isolated and alone. CCA believes the best antidote is connection. We provide opportunities for meaningful connections through Family Networking, Regional Events, Virtual Support Groups, and the Annual Retreat.

Connect with Families ➜

Educational Resources for Schools

Free materials to share with your child's teacher, school counselor, or classmates. Reduce stigma, build understanding, and help your child thrive in the classroom.

Download school resources ↓

Financial Assistance for Medical Travel

When the right specialist isn't nearby, CCA helps cover travel costs so your child can access the best possible care.
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Learn about assistance ➜
Build Your Network

Meeting Other People Like You

Connecting with others is just a phone call or keystroke away. CCA maintains a list of kids, parents, grandparents, siblings, and adults interested in communicating with others. We match you as closely as we can to someone having similar experiences.

Family Networking
Family members are connected with others in similar situations to share emotional support, discuss problems, and identify resources. Being able to communicate with other parents, siblings, or patients helps you feel part of a larger community.
Regional Events
CCA hosts Regional Events and Craniofacial Acceptance Month Gatherings throughout the year - bringing families together in their local communities for in-person connection and support.
Virtual Support Groups
Can't attend in person? CCA's Virtual Support Groups connect families across the country by video and phone. A dedicated space to share, listen, and find community wherever you are.

Ready to connect? Contact our Program Director:

Rasheera Dopson, MPH - Program Director • 800.535.3643 • rdopson@ccakids.com
For adults

Growing up with a facial difference and thriving.

CCA serves adults individuals with facial differences throughout their lives - not just in childhood. Whether you're 18 or 68, there's a place for you in this community.

Adult track at the Annual Retreat

Every year, the Retreat includes programming designed specifically for adults - peer sessions, speakers, and open discussion about navigating life with a facial difference.
Explore the Retreat
Adult Peer Networking

Connect one-on-one with other adults who understand your experience. Request a match through CCA's Family Connections program.

Adult Peer Networking
Become a Speaker

The CCA Speakers' Bureau creates a platform for CCA Kids and Adults to share their passions, interests, professions and personal stories in front of an audience.

Speaker's Bureau
"Seeing others experiencing this helps give us hope, knowledge, and insight for the future."
Mom of a Daughter with Treacher Collins Syndrome
A group of people represents as a team
Downloadable

Educational Overviews
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Community

Stories from people living this journey.

Emma Cassidy – Ireland
Living with Goldenhar Syndrome: I learned to advocate for myself
Unique. A word used to describe me, as far back as I can remember...
Read story ➜
Linda Flores Alcantara – San Francisco, CA
My Blessed Life
Hi name is Linda Flores Alcantara I’m 32 years old. I am the youngest of two siblings...
Read story ➜
Dr. Michael Goodman - Indianapolis, IN
Being the Representation You Needed
Michael Goodman, M.D.,is a pediatric hospitalist at Riley Hospital...
Watch his interview ➜
Children's Craniofacial Association
Supporting and inspiring individuals and families affected by facial differences since 1989.
15851 Dallas Pkwy. Ste. 245, Addison, TX 75001
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214-570-9099
Toll-free at 800-535-3643
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